It was cancer. I made the right choice! :)

Hello everybody guys! 😉 

I just got back from the endocrine surgeon post-op follow up.   She is very, very glad I made the decision to have the total thyroidectomy, and so am I.  I would have needed more surgery, and now I don’t! 

The nodule did contain papillary thyroid carcinoma.  Now what does this mean?  Well, not much.  Basically, papillary thyroid cancer is, to quote my surgeon, a “happy cancer,” ie it’s a cancer that rarely kills.  The cancer looked totally normal, as far as cancer was concerned, and the tests of the surrounding tissue was normal, including the lymph nodes.  The cancer was in its beginning stages, and as she said, papillary thyroird cancer, in its early stages, is almost never fatal.  The endocrine surgeon upped my dosage for my thyroid replacement therapy, since she says, “That keeps your neck calm.”  Basically it helps reduce the risk of cancer recurrance. 

I’m sure the question everyone is asking is, “What’s next?”  Well, we’re not sure.  Here’s why.  As I said, the way to treat thyroid cancer is to take out the thryoid gland.  They did that.  I no longer have cancer.  Radioactive iodine treatment will not increase my life expectency, because my life expectency is normal.  However, the radioactive iodine treatment can reduce the risk of recurrance.  Thyroid cancer can recur later in life, and when it does, it usually appears in the lymph nodes. 

Now here’s where it gets dicey.  The recommendation (who comes up with these recommendations?  I don’t know.) is for radioactive iodine treatment in the case where a throid cancer nodule is greater than 1 cm.  Mine was 1.3 cm.  In other words, it’s close enough to the boarder that I could go either way.  My surgeon, who was very enthusiastic for a total thyroidectomy, seemed far less enthusiastic for radioactive iodine treatment.  “If it was 2cm or 3cm, I’d say definitely.  But this, I’m good with either way.”  She asked that I talk to my endocrinologist within the next couple of months to see what he recommends.  (I’m seeing him on March 14th.) 

So, basically, I’m going to be reading the risks and benefits of radioactive iodine treatment, and see if that outweighs the risks of the cancer returning.  I’ll also talk to the doctor and see what he recommends.  If he really wants me to have radioactive iodine treatment, that’s one thing.  If he doesn’t, that’s another thing.  If I do not have the treatment, they will simply continue to monitor my neck and make sure I don’t show any signs of the cancer returning.  Of course, even if I have the radioactive iodine treatment, I will still have that. 

 As my surgeon seemed to suggest, he may simply decide it’s not worth the side effects and the risks of the treatment.  She doesn’t seem to be convinced that it is.  I remember how she was when I went in for the presurgical consulation, when she really wanted me to have a totaly thyroidectomy.  She never bullied me or anything, but she made it very clear that she thought it was the best choice, and that if I chose otherwise, it would be against her advice.  As she went into the operating room, and confirmed that I was having a total thyroidectomy, she said, “I think that’s the best possible choice.”  And she meant it, I could tell.  She seemed less convinced that radioactive iodine would be the best choice, much more on the fence. 

Until then, I read and wait.  But I don’t have cancer anymore.  I want to reiterate that.  I no longer have cancer.  The radioactive iodine treatment would be to prevent me from getting cancer again in the future, not to kill any remaining cancer cells in my body.  There are none. 

Now, as promised, this post will contain a picture of my thyroid. 

Warning: Picture of Thyroid Below

My Thyroid

 My surgeon was unhappy with the picture, because the nurse laid it flat.  It’s supposed to be V shaped.  I don’t care.  Remember it’s mirror image, so the left side is the right side, where the cancerous nodule is.  This picture was taken with a cell phone.  That’s the great thing about cell phones in this day and age. 

I’m also cleared to return to work tomorrow.  The bad thing is now I’ll have to be nice to customers again.  😦  The great thing about cancer is sometimes, you really don’t care about other peoples small tantrums.  I’m working as a bank teller right now, (while I finish my teaching license) and occasionally people want tellers to do things that are against the rules.  Not just bank rules, federal laws.  Before, I used to be afraid of telling people that I could not do something, because I was afraid that they would get mad.  That’s faded over time, and ever since the diagnosis, I’ve noticed that I have no pity for customers who asked me to do things that I’m not allowed to do. 

For example, another teller had a customer who wanted to deposit a check made out to her and someone else into an account that only had her name on it.  The teller told her she could not do that, and she threw a fit.  When she came back to get me (I was on lunch break) and told me about it, I thought to myself (seriously!) “I’m gonna enjoy this.”  Now, I didn’t yell at her or anything, but I didn’t feel bad at all telling her that she couldn’t do that, it was against the law.  A part of me was thinking, “Yeah, you can’t put the check in your account, I have cancer.  I win!  And now you’re miserable too, which makes me feel even better.”  (Never forget the words of the wise woman who prayed, “Dear Lord, if you won’t make me thin, at least make my friends look fat!”) 

So, now I’ll be going back to work.  I’m going to try to be more polite to customers, but I am going to keep part of the “cancer attitude” I had.  If a customer wants me to do something I cannot do, or is illegal, they can pitch a fit, bitch, moan, cry all they want.  It doesn’t bother me.  If they have a problem with the federal laws, they can call their Congressman.  Don’t get me wrong, I never used to give in to the customer, but I used to be afraid of their anger, of them being unhappy with me.  Now, I don’t care if they are unhappy that I won’t break the law.  🙂 

  As I mentioned before, I am feeling so much better that I am once again dancing to music in my room.  Here’s a video that approximates what that looks like. 

That’s enough for now. 

Happy Mardi Gras everyone! 

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12 Responses to It was cancer. I made the right choice! :)

  1. queridorafa says:

    Hi Emma–Thanks for keeping us updated! So, it sounds like good news, overall (although, given the title of your post, it feels strange to say that), but it must feel good to know you made the right decision and are now cancer-free! Also great that you’re feeling bettter/dancing! It also sounds like you have good doctors to help you with the next set of decisions–so important. Hope you have a good day back at work!

    • Yeah I know. When I told my brother how my doctor said this was the “happy kind of cancer,” my brother said, “I didn’t realize cancer had a Shirley Temple variety,” and “I’m glad you have the Tele Tubbie cancer.”
      Yep, it feels really good to know I made the right decision, and it feels good to be dancing again. I missed that. 🙂

    • Arienna Lee says:

      I second QRs sentiments… so glad you made the right decision. Also, I hope that you get a bit more clarity on the Idodine treatment… it sounds like a bit of a brutal undertaking and it would be nice to have a clearer rec. nay or yay to base YOUR decision on!

      Also, lol, your customer service stories. I hear ya! Glad you’re doing so much better & sorry you have to go back to work. 😉

      • Yeah, clarity would be nice. From the surgeon, I got the sense that she would lean more towards no, though it’s more of the endocrinologist’s call than her call. I’ll get his opinion as well.
        Yep. There’s group on Facebook called “Working in Customer Service Caused Me to Lose All Faith in Humanity.” Ever so true.

  2. Arienna Lee says:

    Also, are the stringy things part of the thyroid… or is that just thread?? (Liked your warning headline btw, made me grin)

  3. mariposaxprs says:

    Hi Emma,

    It sounds like a relief to know that you made the best possible choice when you had your surgery. I hope you feel better about the decision, and also, that you take it easy in your first days back at work. By all means, feel free to give a firm stare to customers who are overly pushy! Also will send good thoughts your way that the upcoming appointment also gives you more clarity about the options for future treatment. Glad to hear you have the information you need about the medical treatment, and that you’re feeling well enough to return to everyday life!

    • Oh, I am definitely going to give firm stares! Yeah, clarity would be nice. It sounds as though my endocrine surgeon would be a “no, but it wouldn’t hurt anything,” answer. Don’t know what the endocrinologist will say. I’m just glad I made the right choice when I had my surgery. 🙂
      I was totally exhausted after work yesterday! Today was better, but still tiring. I’ll get there though.

  4. Iram says:

    Emma, are u able to speak okay? I mean did the operation have any affect on your vocal cords? Do u feel tired? I hope u’ll be 100% well and healthy again. I like how u put Rafa’s dance video in the end- that can put a smile on anyone’s face. Warm wishes….

    • My voice is still a little hoarse. However, the doctor said I had “big, perfect nerves,” so there’s no nerve damage. I’m still caughing a lot, so that’s partly why (imo) my voice is still a little hoarse. But it’s nowhere near as bad as it was. Mom read that the hoarseness could last two months, but I can have conversations with people; I just start caughing. It’s a lot like getting over a bad cold.
      I do feel tired at the end of work. I was super tired yesterday, and somewhat tired today. I think by the end of next week I should be feeling normal on that front.
      Glad you enjoyed the Rafa dance. I like to think that my dancing is better than that, but it’s probably not. 😉

  5. thank you so much for this post. your story is my story as far as the size of the cancer and being found after the thyroid was removed. I just got my results today. My surgery was last friday. My doc did not recommend RAI either as its the same size as yours.

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