Medication Frustrations

Part of the problem with taking medication is differing advice. When I was prescribed my Synthroid medication, I was told to take it half an hour before eating anything else. (I had conflicting advice about caffeine.) Of course, I was told the best time to take thyroid medication was in the middle of the night, if I woke up to go to the bathroom.

Anyway, I noticed back in my that my TSH was trending higher. Normally my doctor would call me and give me advice or adjust the dosage, but he did not do that this time. So I thought everything was fine and went on doing what I was doing.

I just had my TSH levels tested again and they were even higher. Then, I noticed a message from three months ago on Cleveland Clinic’s My Chart. Apparently, my doctor was concerned with how I was taking the medication. He wants me to wait an hour before eating or drinking anything other than water. Because I didn’t get a phone call, I didn’t get the message. (He’d never sent me a message through My Chart before.) I continued to follow the advice I was given when I first started taking my medication.

So, now I haven’t been following his advice for three months and my TSH levels are even higher!

Now, this isn’t the end of the world. I’ll just wait an hour before eating anything else and my doctor can up my dosage for a little bit. I sent him a message through My Chart, since that seems to be how we are communicating now. I was supposed to see him last May, but because my insurance situation has been all fouled up (what with being unemployed, or rather without full time insurance) I didn’t see him at the end of May. I’ll also call his office to let him know that I did not receive his instructions, but I will be following his instructions in the future. He may simply want to repeat the labs a little earlier. (Of course, I may have to find a new doctor, since I’ll be switching health insurance with the new job. If not, I’ll try to get in to see him or another endocrinologist sooner.)

Still, I am scared. I need to make sure my TSH does not get too high, especially since it helps to keep the cancer from returning. (Of course, my surgeon said my cancer is not coming back.) Anyway, I also can’t become hypothyroid, because that would suck for obvious reasons.

Now I just have to wait for my doctor to get back to me with instructions. I don’t know what he’s going to do, and I feel terrible that I didn’t see his note. (Of course, if he had called me like he did all the other times, I would have known!) Anyway, I know this is a problem that can be fixed quite easily. I just need to take the medication correctly and then make sure I’m on the right dosage. This is a problem that can be fixed.

Anyway, this is the problem with being unemployed and being on medication. I hate being unsure about going to the doctor, of having to switch doctors. I also hate getting conflicting advice on the medication. Even online, it’s conflicting. Some websites say, “Wait 30 to 60 minutes.” Then my doctor says that I need to wait at least an hour! What is it? Why can’t they have simple answers?

I know that this can be fixed. I just want it to be fixed now! And I will feel nervous until I know what is going to happen next.

Oh, in other, better news, I am officially hired. 🙂 Can’t end on a negative note. I may catch the trapeze after all.

aliya mustafina

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